Monday, August 02, 2010

snapdragons and koalas

we took a big step last week:
large and daunting...
we started to organise demonstrations of powered chairs.

flower v marsupial... and, although I shouldn't say this, we already have a preference...

Snappy the Snapdragon is a powered chair by Dragonmobility:


Dragonmobility is a small, family run company set up by Dan and Lou based in Cambridge.  Dan and Lou's daughter Ruth was diagnosed with SMA in 1981.  Realising that Ruth would need to be independently mobile to live as normal a life as possible, the yellow peril was born - a powered chair which could amazingly move from floor to heighchair height.  Ruth was independent at the age of 22 months....

WOW!

pretty gobsmacking really, but totally inspirational and liberating too...

so lou is coming to visit on the 19th of august to tell us more and demonstrate all that the Snapdragon has to offer ... we are so very excited...

we already love the idea of a snappy and can imagine eilidh whizzing around in her own chair, but it's a daunting thought too - she's 18 months at the moment and we probably won't get a chair until she's nearer to 2 - we have to apply for funding, fundraise and then order and wait...

but that's not what is daunting...
yes, the magnitude of finding funding is huge...
yes, the waiting will be difficult as we yearn to see Eilidh independently mobile for the first time...

what is daunting is this - seriously, can you imagine a 2 year old in charge of a 113kg powered chair which can speed along at speedy speeds - it's incomprehensible...

but the thought does make me smile too...

my crazy little girl, independently mobile, with niamh standing on the chasis, tagging along for a free ride... whizzing round and round and round in circles...
and the obligatory "pimping" of the chair.. fairy wings perhaps?

in-com-pre-hen-sible!!

then there is the realisation that our Eilidh is going to be wheelchair dependent and the sadness seeps into my soul.  I pray that seeing Eilidh in the chair, seeing the excitement as she gains her independence, will more than compensate for this sadness I feel right now...  I have to hold on to that mad and  mental image of my girls on the snappy, enjoying life to the full; me standing watching, with D at my side, smiling a huge happy smile as we are a happily mobile family...

(oh, yes! the koala does still have a look in - Permobil come to visit on the 11th...)

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