Tuesday, January 04, 2011

Broody Mother Hen...


I'm like a brooding mother hen!

Niamh 3 years 9 months and 22 days...
Eilidh 1 year 11 months and 10 days...
+ the risk of SMA...

A. N. Other?
That is the question I am asking myself.

There is nothing like a batch of wonderful friends
To stir the maternal ache inside my heart.
The newborn baby:
10 perfect fingers
10 perfect toes.

The unconditional love that you feel in that
That you
Upon your
Newborn baby.

A brand new life.
An ever radiant possibility.
Welcome to this Wonderful World!

I had always thought of myself as a
Mummy to

D had always thought of himself as a
Daddy to

We have thought about this
Many times since
Diagnosis Day.
Mulling it over.

I immediately wanted no more.
D instantly wanted more.
"Another would be lovely...
A brother would be nice...
A friend for both of them...
Perhaps a dog would do..."

But a 1 in 4 chance of another child with SMA... a 1 in 2 chance of a child carrying the SMA gene... a 1 in 4 chance of a genetically "normal" child...

We don't even know if we are both carriers.  We haven't had our genetic results back yet...

There is a tiny chance, up to 2% , that Eilidh is a de-novo mutation and that only one of us is a carrier...

A chance that Eilidh is a new SMA conceived in love...
A chance that we could have more children naturally
With no more worries of SMA...


So what happens now?
What are our options?
What did we discuss at our genetics appointment?
Watch this space

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