Wednesday, December 14, 2011

Little Fingers

A Christmas Card for Eilidh arrived the other day.  I watched her as she grabbed it and looked at it and even bit the corner of the envelope: and then I realised that her little fingers were too weak to open it.  Although she can sit up and feed herself chocolate and cake and hug her baby tight, she can't rip paper (or open a bag of chocolate buttons!).

So this Christmas, we'll be wrapping in tissue paper - she can definitely tear that apart quickly!  We'll have to ask others to do the same too; we can't deprive of her the joy of opening her presents...

Sometimes you experience a moment - and this was one such moment - that puts Eilidh's SMA into context... "oh, that's how weak she is..."

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