Wednesday, August 29, 2012

Why I blog...




Long before the Olympics this was my song du jour.
 
It spoke to me, encouraging me forward, to blog and talk openly about my life and life with SMA,  to share my "version of events", hoping to inspire and hearten others that life with a child with a physical disability is worthwhile.  It encourages me to try and spread awareness of SMA and to be in contact with others within the SMA, neuromuscular disorder and special needs communities exclaiming that "there's no need to be afraid, i will sing with you my friend", you are not alone.
 
There are times when I don't feel as though I am doing enough, when I don't have enough energy to fulfil my ideas, when I don't have enough time to dedicate to spreading the word, when I don't have anything to give, but I reassuringly know - although I sometimes need reminding and that is where this song comes in - that I am sharing my "version of events" and that sometimes that is enough. 
 
This is why I blog...











"You've got the words to change a nation
but you're biting your tongue
You've spent a life time stuck in silence
afraid you'll say something wrong
If no one ever hears it how we gonna learn your song?
So come, on come on
Come on, come on
You've got a heart as loud as lions
So why let your voice be tamed?
Baby we're a little different
there's no need to be ashamed
You've got the light to fight the shadows
so stop hiding it away
Come on, Come on

I wanna sing, I wanna shout
I wanna scream till the words dry out

so put it in all of the papers,
i'm not afraid
they can read all about it
read all about it oh



At night we're waking up the neighbours
while we sing away the blues

making sure that we remember yeah
cause we all matter too
if the truth has been forbidden
then we're breaking all the rules
so come on, come on
come on, come on,
lets get the tv and the radio
to play our tune again
its 'bout time we got some airplay of our version of events

there's no need to be afraid
i will sing with you my friend
Come on, come on
I wanna sing, I wanna shout
I wanna scream till the words dry out
so put it in all of the papers,
i'm not afraid
they can read all about it
read all about it oh


Yeah we're all wonderful, wonderful people
so when did we all get so fearful?
Now we're finally finding our voices
so take a chance, come help me sing this
Yeah we're all wonderful, wonderful people
so when did we all get so fearful?
and now we're finally finding our voices
so take a chance, come help me sing this

I wanna sing, I wanna shout
I wanna scream till the words dry out
so put it in all of the papers,
i'm not afraid
they can read all about it
read all about it oh


I wanna sing, I wanna shout
I wanna scream till the words dry out
so put it in all of the papers,
i'm not afraid
they can read all about it
read all about it oh"





3 comments:

BavarianSojourn said...

And this is why I love blogging, even though I don't have an important message like you. And even though I think you already are, I am sure you will get this message across as you want to, in your own time. xx

New Mum Online said...

What a fabulous song - thank you for sharing.
Good luck with your journey and your voice.
Liska x

Michelle Daly said...

Both you and the song are so very inspiring!
Good luck, you'll be paving the way for many parents who find themselves in the wilderness with a special needs child.:)