Thursday, February 28, 2013

Rare Disease Day 2013

There are approximately 7000 rare diseases
350 million people are affected worldwide -
75% are children;
30% of them will not see their 5th birthday

Spinal Muscular Atrophy is but one of these rare diseases: Joubert's is another.  I thought that our world was small but when we stand together Eilidh and Finn are not alone; Katie and I are not alone and together there is a whole lot of hope because, worldwide we have a huge voice and we should be shouting loudly and proudly!



BavarianSojourn said...

An important day, and a great informative little film... :)

Looking for Blue Sky said...

Well done to help raise awareness of this important day and your continued campaign to tell more people about SMA x