We were recently recommended - and then self-selected - for a pilot running in East Renfrewshire. "Taking the First Steps" is a programme funded by the Scottish Government and led by In Control Scotland to support families like ours improve the "outcomes" - or in lay man terms, quality of life - for our children and our family. The oh-so-very-near future of support is going to be self-directed; we get to choose what support we want, how we receive it and when we receive it, enabling individuals and families to have support delivered to them which is as individual as they are.
Taking the First Steps" allows families and services to better explore and develop new ways of working together ahead of the self-directed support becoming an option some time next year. During this particular pilot, run over the summer holidays, we will get the support from local services to work out how to spend £200 in a way that has the greatest impact on Eilidh and our family too. During the pilot we are to record and share what we learn by gathering evidence over the summer and sharing our experience with the caring services and other families - there is no better place to share this than here on my blog where I write about day-to-day life, living with a child with a neuromuscular condition, who also has additional needs.
Over the next few weeks I'll post a total of four posts and you can follow our story as we become more "in control":
In Control: the fun - budget spent = fun, fun, FUN!
In Control: the experience overall - the good, the bad and the ugly