where has the time gone?
eilidh has grown into an amazing little girl:
SMA has not robbed her of her spirit, her personality,
SMA has robbed her of her ability to move independently
but not her independence.
SMA contributes to this gorgeous girl every day -
it makes her who she is,
spreading joy and hope
beyond everything i could have hoped for her.
and yet my heart remains bruised
(but no longer fractured)
and i have come to realise that
i don't think that that will change;
nor do i think that I want it to change
because i have grown as a person.
i am stronger
and more gallus
and a wonderful advocate for my daughter, for my family, for SMA;
SMA makes me who i am, too.
please do not think that i am a saint though,
that i truly accept this twist of fate,
the life unexpected now lived.
i still have moments of anger ,
as deep and wide as the ocean
life goes on
and life is bright and good
for eilidh and niamh are my