" (I) was totally unprepared for news about Eilidh. I don't think anyone is ever ready for news like that; one has to really just survive a day at a time in the beginning. All one wants is for someone to say it's not true or it can be fixed, until the shock wears off. Trust in your own strength - you will find your way. I don't see SMA children myself, but the few we have coming through our ward are bright and resilient children who take every opportunity to do the best they can with what they have: their physical weakness in some way compensated for by an inner strength.
Our thoughts are with all of you."